Monthly Archives: July 2016

Acceptance and Pacing

2016-06-07 11.35.192016-06-07 11.28.47

Went to Barcelona, Spain for a month with my sister.  I wasn’t feeling great health-wise but I DID IT!  I want to share with you what things helped with traveling when you have a chronic illness.  So much help at this site.  Check it out.  Support groups, study groups, classes.  This has helped me tremendously.   http://www.cfidsselfhelp.org/

So, for traveling it begins when you make airline reservations.  Make sure to tell them to have a wheelchair available for you at each connection.  It doesn’t matter if you can walk it’s the idea that you WILL save energy and arrive at your destination in condition to have a good time.  Every airport between Oregon, Canada and Spain was so helpful.  The person traveling with you also will be following you so this helps to get through security and take elevators to destinations….it all helps.  The other suggestion is to buy a tripod camping chair.  They’re very light with a strap to throw over your shoulder.  I literally did not even know I was carrying it but it was so handy.  If I found myself in a line I’d just pull out my chair and sit and rest.  Anytime you find yourself in a location where there’s nowhere to sit, just pull out your chair.

I was able to use the subway, buses and trains in Spain to save steps.  It was all about listening to my body and resting when I get tired.  It worked.  The only problem I had was that I had to come back and face responsibilities at home.  Being gone this long made me realize what changes I needed to make at home.  I needed to speak up and not accept invitations every day.  It’s important to always have at least one day between events to rest more.  I needed to time how long I spend on the phone and limit that.  I need to limit time on the computer and switch to another activity.  I need to “chunk” big projects down by working on it for 10 minutes and resting….break it up over a week’s time instead of trying to do it all at once.  So many things (T-3) to the thyroid med I’m already taking.  Just a very small amount.  It seems to be working.  I’ve also decided to start a new protocol which involves taking monolaurin, a supplement that, building up slowly to the full amount, can rid your body of most bad bacteria and viruses.  It’s being given to people with Lyme disease but will work for Epstein Barr Virus.  So I just started a week ago, very slowly building up to 3 scoops 3 x a day on a full stomach.  I’ve also started using DoTerra supplements which I did notice more energy while taking.  It’s only been a month but I ran out and do notice the difference.  This is the first time a supplement actually made a difference when taking it.  I like the essential oils so much I decided to be a member and sell them as well at My DoTerra.

When you have a chronic illness the most important thing you can do is pull yourself out of depression, the thoughts of, what did I do to cause this, of how much pain you’re in, of how you’ve lost the life you loved and REINVENT a new life.  You didn’t do anything to cause you’re illness, it’s not your fault, shit happens and that’s it.  It is what it is so now it’s time to move on and find ways of living your life that bring you joy.  For me it is learning water color painting, writing, yoga, meditation, qi gong, but most of all helping others.  If I can help one person every day in some way I feel like I’ve contributed something to improving the world.  It could be just smiling at someone you see on the street or sharing information that might help them in their journey, a phone call to a friend in need….You can accomplish much more than you realize so just keep on keeping on.  Love you!

 

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